Significado de cuidar niños con parálisis cerebral

Laura F. Niño-Serna, Wendy Sofía Meyer-Martínez, Andrés Felipe Tirado-Otálvaro, Diana Cristina Martínez-Pérez, Carlos Enrique Yepes-Delgado

    Producción científica: Contribución a una revistaArtículo en revista científica indexadarevisión exhaustiva

    Resumen

    There is insufficient evidence regarding meanings developed by caregivers of children with Cerebral Palsy in Colombia. The methodology involved adopting a hermeneutic approach, which was combined with the grounded theory method. A total of 13 semi-structured interviews were conducted with adult caregivers of children with cerebral palsy. Following an analysis of the results, four categories emerged: unconditional love; caring as a woman; experiencing grief; and the endless fight for their child’s rights. It was concluded that the caregivers of children with Cerebral Palsy have developed determined coping skills. This is because they are willing to give up their own lives, sacrifice their personal and social relationships, experience constant grief and learn new ways of caring and transforming their homes in their struggle to provide dignified care for their children. Unconditional love allows these caregivers to recognize themselves as unique caring women.

    Título traducido de la contribuciónMeanings of caring for children with cerebral palsy
    Idioma originalEspañol
    PublicaciónRevista Latinoamericana de Ciencias Sociales, Ninez y Juventud
    Volumen22
    N.º1
    DOI
    EstadoPublicada - ene. 2024

    Nota bibliográfica

    Publisher Copyright:
    © 2023 Revista de la Facultad de Medicina Humana. All rights reserved.

    Palabras clave

    • Cerebral Palsy
    • caregiver burden
    • caregivers
    • child care
    • child development
    • child rearing
    • children with disabilities
    • empathy

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